They tell you they’re making the series to help people see you through a “compassionate” lens; but instead, they edit things out of context, and conveniently omit any & all medical & scientific facts surrounding these conditions. I lived like this for 2 years before finding neural retraining and retraining my brain not to go into fight or flight. The editing done on Afflicted crosses that boundary in my opinion. ‘Afflicted’ took our story and made a work of fiction. But the worst part was the producers said they’d pay for the procedure and didn’t. However, the show continuously asks the question of whether the subjects are truly sick, or if it’s “all in their heads.”. The pathology is not at all related. — Jamison Hill (@NotTheWhiskey) August 13, 2018. pagespeed.lazyLoadImages.overrideAttributeFunctions(); i regret unleashing my frustration on you. The only other rationale I can think of is that during post-production the editors felt the surgery wasn’t important enough to fit into my story, but that seems absurd. The latter is basically what the producers did and now it seems they’re trying to justify their actions with flawed logic. – puffins&penguins&me, How Netflix’s ‘Afflicted’ Failed the Chronic Illness Community - Euro Journal, The Time I Bought a $2,000 Coffee Mug – Jamison Writes, The Art of (Not) Accepting Unsolicited Advice, Netflix and Hill: The True Story Behind “Afflicted”, PICC IV insertion procedure which I redid for the cameras, My low NK cell function, low cortisol, MTHFR gene mutation, active cytomegalovirus and EBV tests. Imagine if, in my memoir, I quoted my mom in a scene that she wasn’t actually part of or even just twisted her words around. Nonetheless, through a combination of deceptive questioning and clever editing techniques, the producers created a false reality for her and me in that scene. — jill maxi edelstein lcsw (@attunedtherapy) August 14, 2018. I did not enjoy having this guy in my space; he started walking in on me with a camera while I was using the “bathroom,” a very private part of my daily routine that I explicitly told the crew they could not film. Jake I am with you! Jake Sidwell, one of the seven people featured, also shared an hour-long YouTube video on Thursday in which he explains what the documentary process was like, how “Afflicted” misrepresented those with chronic illness as well as the “medical proof” the docuseries left out. — Nick Dinnerstein (@ComposerFocusMA) August 14, 2018. That’s why, perhaps out of sheer instinct, I worked extremely hard to make sure my story was told in the best possible light. Jill and Janine, for example, have taken issue with the emphasis the series places on their financial issues, and the incorrect information “Afflicted” has suggested about their financial status. Afflicted follows 7 people with “controversial” chronic illnesses as they try to find a treatment for their condition. What the series doesn’t reveal, and what Jake explained in his essay, is that he also experiences a wide range of other symptoms, including chronic low white blood cell count, low red blood cell count, positive Epstein-Barr virus, tachycardia, tinnitus and Bell’s palsy, for which he sees a hematologist/oncologist, infectious disease doctor, neurologist, cardiologist, primary care doctor, psychologist, alternative medicine practitioners and so on. There’s one sound bite from a doctor who says that studies have shown that trauma can damage the immune system, that’s absolutely true. All of this information was provided to DocShop Productions and here are the most noticeable parts left out of my story: If you’ve watched Afflicted then you know that several of the episodes focus predominantly on psychological issues, often implying that the illnesses seen in the series are created or contributed to by the mind. Then, so the cameras could film the minor surgical procedure, I asked my nurse to come out and insert a second midline. I periodically asked a few of the producers about it and they could never tell me anything useful. Join kitty enthusiast Gabby and her sidekick Pandy Paws as they team up for a series of animated adventures. Oops! It’s impossible for me to know what happened to my story, and the series as a whole, during the editing process. Some of the cast members (including those with illnesses as well as their partners, family members and friends) took to Twitter in the days following the series’ release to share their initial reactions. Also like the Friends, the people we meet on Afflicted are healthy, if a bit self-obsessed. I hate that when people see how defensive I get about my illness being called psychosomatic they automatically assume it’s because I’m in denial and refuse to try therapy or SSRIs. New TV Shows on Netflix. It appears you entered an invalid email. “Acknowledging” skepticism doesn’t make people take us more seriously, especially when the evidence of their biological basis – both my abnormal lab results and the broader research – is purposefully excluded. I also didn’t want to diminish the work of some truly talented and genuine people who worked on the series and just happened to land a bad gig. For starters, later in the episode she says: “Jamison’s a fighter. Sorry, your blog cannot share posts by email. If this doesn’t sound like a big deal, let me emphasize — at the producer’s request, my mom pulled out a foot of tiny plastic tubing from inside my arm and then, using a scalpel, my nurse made an incision in my other arm in order to insert the new tubing. At one point in the series the producers include an iPhone video I took the winter before they showed up to film. Our conventional medical doctors were not consulted during filming. afflicted netflix cast where are they now For that reason, he declined.The “Afflicted” cast members said the editing of the series warped their stories to such an extent that they are no longer true.Janine, who works as a nonfiction/documentary television and film editor, explained that she’s very familiar with the editing process and the need to manipulate soundbites to create a storyline. Several people featured on the show have spoken out about the problematic way the show handled their stories, and expressed their dissatisfaction with the overall message “Afflicted” conveys. It really is completely shocking. I’ll have some big announcements in the weeks and months leading up to the release of the book. The slew of tests that Dr. Eric Gordon did — blood, hair, saliva, urine, etc. © The show suggests they need $90,000 for their house by winter and that Dr. Nagy is selling Jill on a $30,000 treatment plan — neither of which, Jill says, is true. They also chose to omit any mention of the psychological evaluations that were mandatory for all of the main subjects of the series. I have been bullied and harrased since #Afflicted came out! We exchanged the following text messages: I thought she was joking, and she probably was at the time, but shortly thereafter that same producer contacted my mom and actually suggested that she give me a tranquilizer and transport me to a doctor. As a writer I know the power of good storytelling, but I also know the importance of telling an accurate and truthful narrative. Seven people suffering with bizarre chronic illnesses hunt for explanation and cures while simultaneously battling with social skepticism and abandonment. In his essay, Jamison also provided a list of things he said were filmed (information about his personal health as well as his conditions) but were omitted from “Afflicted.”. If making a film with a “compassionate” look at the lives of chronically ill people and the complexities of their illnesses was the filmmakers objective, as they said it was, then they failed miserably. I had to accept a friend request from some random account on Facebook so private investigators could look through all my photos and posts. I can’t imagine the producers wanted to see me suffer through surgery for nothing, but maybe they did so in order to make me believe they were focusing more on the science and medical aspects of my illness when really they cared more about psychobabble. 2. 1. His “joke” immediately popped back into my mind as I watched the so-called “experts” he interviewed on the show and how they rattled off nonsensical psychobabble about physical illnesses — essentially denying that some of the illnesses portrayed on the show are physical, instead insisting they originate in the mind. That was a big part of Intervention. My mom can’t remember the question the producers asked in order to create that sound bite, but she probably wasn’t even talking about me, she was using the second-person, likely to describe a general scenario that other, less supported ME/CFS patients in similar situations endure. Eventually I got through the casting interviews and the producer, tantalized by the thought of me potentially being well enough to go outside for the first time in years, liked my story enough to interview my family. You wouldn’t treat a cancer patient with a mental illness protocol and vice versa, so neither should you treat ME/CFS or Lyme as you would a mental illness. With Bekah, Jake, Pilar, Star. But none of that was mentioned, nor was my diagnosis and treatment of Lyme disease and the MTHFR gene mutation. But based on the footage I saw the film crew capture compared with the footage that actually appeared in the finished product, it’s fair to say that there was a coordinated plan between the post-production team and the field producers who oversaw filming. In fact, one could argue that they gave far more air time to skepticism than the scientific research that is being done on the chronic illnesses profiled in the series. Enter your email address to follow this blog and receive notifications of new posts by email. When I asked one of them about this, he sent me this note: What exactly is going to be effective? In fact, we’d end up losing money because of the footprint the production company left on our property and lives. In one scene he is heard saying: “This is an incredibly well adjusted young man. Montoya told us that although he was contacted by the “Afflicted” crew, he does not recall being interviewed. Many also claim their loved ones were asked pointed, leading questions (largely surrounding the notion of doubting their illnesses), and their responses were edited and framed to suggest they were skeptical, even when they weren’t. Rather than ask the question: ‘How can we help these canaries in the coal mine?’, ‘Afflicted’ asked over and over and over again, ‘Are these canaries crazy?’. If nothing else this step should have exempted us from the level of scrutiny we faced on the series about our mental health. I have debated about writing this blog post because in being honest about my experiences with Afflicted, I felt it might diminish my story and the stories of my fellow participants. The difference, however, lies in the type of care and treatment. Actually, ‘Afflicted’ didn’t really pose it as a question. Making sick people look bad? There is one scene in the first episode of the series where my mom says: “At first you’d always be questioning … the whole hypochondria … is there some psychological reason?” In that part of the film her voice is dubbed over shots of me bathing, and it appears as though she’s saying there was a time when my loved ones thought I was a hypochondriac, but I know for a fact that’s not what she meant. Many years ago, when a friend with ME told me that they had been rediagnosed with Lyme and and that they were emabarking on an expressive treatment programme, it was only because the medics in my family advised me otherwise that I did not go to see the same doctor. However, they feel the docuseries did not accomplish this goal. And I’ll be the first to admit that I have serious memory/cognitive issues, depression, and anxiety, but these are not causes of my illness. Netflix released the documentary series Afflicted on August 10 th of this year. I lived in my house with no breakers on, made people change into scent free clothing before they visited me, no cell phone, no WiFi. And then of course there’s the physical injuries, which may have damaged my nervous system. People with mental health conditions deserve empathy and care and the treatment they need, just like those of us with chronic physical illnesses deserve those things. I’m not victimizing myself, or anyone else, but I am incredibly disappointed with the scope and slant of the overall series. Videos Afflicted. That would have been good drama. We’re currently working on a new cover for the book (that’s why there’s no thumbnail on the listing yet). Man, if only you knew how we as subjects were misled … now that is unjust. But he had to leave after a few days and another cinematographer replaced him. This is not an emotional problem.”. It’s unfair to categorize people like this because they “become” their illness. Afflicted - (2013) - Netflix. The subjects of the new Netflix documentary series Afflicted claim they had to prove their clinical diagnoses of chronic illness and were mental fitness before filming, but aren't portrayed that way. They did not tell my story either! Terms, the subject of much debate and controversy in the, documentary filmed through a “compassionate lens.”, their loved ones were asked pointed, leading questions, petitioning Netflix to remove it from their platform. Perhaps I should just be happy that my story was told at all and that it’s raising awareness, albeit the wrong kind, but that’s nowhere near good, or even acceptable, enough for me. They are, however, definitely byproducts of being sick. If giving all of your surplus energy to try to make yourself better is “becoming” an illness, then sure we “become” it, but if we’re talking about finding some sort of clandestine enjoyment or comfort in living as a sick person because we don’t know how to live any other way, well, that’s one of the most idiotic things I’ve ever heard; that’s not us. There’s a big difference between acknowledging the skeptical perspective and, say, devoting three entire hour-long episodes to psychobabble sound bites about it, which is precisely what the producers did. Since “Afflicted’s” premiere, both cast members and the chronic illness community have spoken out against the series and are petitioning Netflix to remove it from their platform. i had hoped for better. By Cortney Drakeford @cortneyd_ 06/16/20 AT 10:30 AM. — Jesse Bercowetz (@bercowetz) August 15, 2018. According to Jamison, when he and his mom were interviewed, their answers were manipulated. It’s complex, but the mental factors are by no means the biggest factors, certainly not big enough to warrant devoting the amount of coverage they received in Afflicted.

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